# National Foundation for Ectodermal Dysplasias jobs and careers

> 0 open roles at National Foundation for Ectodermal Dysplasias as of October 24, 2026. Source: https://www.thejobsmap.com/company/national-foundation-for-ectodermal-dysplasias

The National Foundation for Ectodermal Dysplasias (NFED) is the worldwide expert on ectodermal dysplasias and the only advocacy organization in the United States dedicated to those living with these disorders. EDUCATION We offer a range of educational resources and events to meet the changing needs of those affected by the different types of ectodermal dysplasias. And, by connecting you with other families like yours, we give you the opportunity to learn from one another. SUPPORT We provide lifelong support for individuals and families affected by ectodermal dysplasias, including: - Offering personalized service and support to families affected by ectodermal dysplasias, particularly those with recently diagnosed children - Helping families understand currently available treatment options - Partnering with doctors and dentists to ensure that the most effective care is being offered - Working with families to find appropriate financial assistance - Helping secure insurance coverage for dental treatment related to ectodermal dysplasias RESEARCH We encourage and support medical, dental, genetic and other ectodermal dysplasia–related research to improve the health and quality of life of everyone living with ectodermal dysplasia. Our ultimate goal is to find a cure. Sign Up for Email - http://eepurl.com/JIjL

## Key facts

| | |
|---|---|
| Open roles | 0 |
| Headquarters | Fairview Heights, United States |
| Founded | 1981 |
| Employees | 1 to 10 |
| Industries | Charity, Dental, Education, Health Care |
| Website | https://nfed.org |

## Leadership

- Mary Fete, Chief Executive Officer
- Jodi Edgar Reinhardt, Communications Specialist
- Ethan Richlak, Advocacy State Lead
- Virginia Higgins, Family Liaison

## Common questions

### Is National Foundation for Ectodermal Dysplasias hiring right now?

National Foundation for Ectodermal Dysplasias has no open roles listed as of October 24, 2026. Roles appear here as soon as they are posted on National Foundation for Ectodermal Dysplasias's careers site.

### Where is National Foundation for Ectodermal Dysplasias headquartered?

National Foundation for Ectodermal Dysplasias is headquartered in Fairview Heights, United States and was founded in 1981.

### Who leads National Foundation for Ectodermal Dysplasias?

Mary Fete, Chief Executive Officer, is at the top of National Foundation for Ectodermal Dysplasias's org chart.

### How do I apply for a job at National Foundation for Ectodermal Dysplasias?

Pick a role on National Foundation for Ectodermal Dysplasias's TheJobsMap page and select Apply. Every listing links to the original posting on National Foundation for Ectodermal Dysplasias's own careers site, so you apply directly with the employer.