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About Cure LBSL

Cure LBSL is a registered non-profit organization dedicated to raising awareness and funds for research into LBSL, a progressive and very rare genetic disorder that affects the brain and spinal cord; most often developing in children, affecting their ability to walk, then even to stand and coordinate fine and gross motor skills. LBSL can also impact infants and adults. Disease severity often correlates with age of onset. We provide information and support to families and individuals living with the disease.