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About FOP Australia

FOP Australia aims to improve the lives of individuals and families affected by the extremely rare genetic condition Fibrodysplasia Ossificans Progressiva (FOP) by: Raising awareness of FOP Providing a support network for families and individuals with FOP Furthering research towards treatment and a cure FOP is one of the rarest, most disabling genetic conditions known to medicine, causing bone to form in muscles (and other soft tissue) throughout the whole body leading to ongoing and permanent restriction of movement. It is a progressive disease and there is no cure. Malformed big toes are nearly always associated with FOP at birth – recognising this sign can prevent misdiagnosis and catastrophic complications from unnecessary investigations that can trigger bone formation.