Friedreich's Ataxia Research Alliance (FARA) logo

Friedreich's Ataxia Research Alliance (FARA) jobs and careers

Downingtown, PA, United States

About Friedreich's Ataxia Research Alliance (FARA)

The Friedreich's Ataxia Research Alliance (FARA) is a national, public, 501(c)(3), non-profit, tax-exempt organization dedicated to curing Friedreich’s ataxia (FA) through research. FARA grants and activities provide support for basic and translational FA research, pharmaceutical/ biotech drug development, clinical trials, and scientific conferences. FARA also serves as a catalyst, between the public and scientific community, to create worldwide exchanges of information that drive medical advances. FARA was founded in September 1998 by a group of patient families and three of the world’s leading FA scientists — Drs. Rob Wilson, Bronya Keats, and Massimo Pandolfo. It was staffed and managed as an all volunteer organization until late 2005. FARA's leadership and numerous patient families and friends have raised critical funds over the years to support FA research. Thanks to the brilliant and committed efforts of many FA scientists, we now understand the cause of FA and specific mechanisms leading to damage in FA patients. These understandings allow for more targeted approaches to treatment which are currently being developed for clinical trials.

Founded in 1998 by Ronald Bartek.

Founded
1998
Employees
11 to 50
Headquarters
Downingtown

Leadership

The top of Friedreich's Ataxia Research Alliance (FARA)'s org chart, with how many people report into each leader.

JF

Jen Farmer

Chief Executive Officer

35 reports

RB

Ron Bartek

President

27 reports

BT

Barbara Tate

Chief Scientific Officer

3 reports

TD

Terrence Downing

Treasurer

PR

Pat Ritschel

Director

SL

Sandy Lane

Director

Jobs at Friedreich's Ataxia Research Alliance (FARA)

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