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About Genetic ALS & FTD: End the Legacy

The Genetic ALS & FTD community is large and growing. ALS & FTD are terminal conditions, and being at a heightened risk for them can have profound impacts on people and families. We organized Genetic ALS & FTD: End the Legacy to provide educational and support resources to, encourage and promote research about, and advocate for the Genetic ALS & FTD community.

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Leadership

The top of Genetic ALS & FTD: End the Legacy's org chart, with how many people report into each leader.

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Daniel Barvin

Co-Founder

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