Rare Remy Foundation jobs and careers

About Rare Remy Foundation

After their son, Remy, was diagnosed with a DHX30 mutation, Lizz and Bobby refused to stand idly by and hope for science to catch up in time. In 2026, they founded the Rare Remy Foundation for DHX30, an ultra-rare neurodevelopmental disorder affecting <200 known individuals worldwide. Their mission is to improve the lives of Remy & his peers by accelerating research efforts to understand and treat DHX30-associated neurodevelopmental disorders. For inquiries, please reach out at: hello@rareremy.org