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About The Ava Grace Foundation

For Families & Caregivers On our website we share information about UPD-14, common signs and symptoms, getting diagnosed, and treatments. Get in contact with other families affected by UPD-14. If you would like to share your family's story with UPD-14 please contact us at contact@avagracefoundation.org. For Medical Professionals: On our website we share available research on UPD-14 and related syndromes, including symptomology, diagnosis, and treatment outcomes. If you have treated someone with UPD-14 in any capacity, please contact us to be included in a directory of experienced medical professionals to be made available to families affected by UPD-14.